Russell Silver Syndrome

Back

Resources

Key Q&A

N.O.R.D.

Family Voices

Help Hope Live

The Russell Silver Syndrome Diagnosis Information Page is a collaborative project of NeedyMeds and The MAGIC Foundation. It is intended to provide educational information and healthcare savings resources for families with children living with this diagnosis.

Russell-Silver syndrome (or Silver-Russell syndrome) is a rare genetic disorder characterized by delayed growth in-utero (IUGR) that spares head growth (meaning the newborn has a head size that is large for his body) and ongoing postnatal growth failure. This disorder includes feeding difficulties and/or low BMI, dysmorphic features including a protruding forehead, and frequently body asymmetry (hemihypotrophy).

Below, please find a list of medications commonly used in the treatment of this diagnosis. Click on the hyperlink to find whether a savings program is available for that particular drug.

This page is for educational purposes only and should not replace medical care. Please consult your healthcare provider.