Diagnosis-Based Assistance Programs for Genetic Diseases - All

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Programs are listed in alphabetical order by national first then alphabetically by state.

12 Diagnosis-Based Assistance Programs for Genetic Diseases - All.

Also look for Camps and Scholarships for Genetic Diseases - All

Also look for programs listed under: 

Chronic, Serious or Life Threatening Illnesses,  Alpha-1-Antitrypsin Deficiency,  Autism,  Charcot Marie Tooth Disease,  Crohn's Disease,  Cystic Fibrosis,  Down Syndrome,  Muscular Dystrophy,  Fragile X Syndrome,  Familial Hypercholesterolemia,  Gaucher Disease,  Hemophilia,  Neurofibromatosis,  Parkinson's Disease,  Phenylketonuria,  Porphyria,  Sickle Cell Disease,  Thalassemia,  Huntington's Disease,  

Program Name Summary Services Provided Areas of Service
Chai Lifeline - Hospital and Home-Based Services Provides several types of assistance to families with a child who has a life-threatening disease. Lodging/Housing Services/Expenses; Meal Service/Groceries; Other; Travel Expenses/Gas Cards National
Chai Lifeline - The Joseph & Elsie Listhaus ChaiLink Program Provides webcam connection and laptop loans to recuperating children with life-threatening disease. Equipment (Misc.); Other National
Jazz Foundation of America - Housing and Emergency Assistance Provides financial assistance to members of the Jazz Foundation of America. Legal Services/Expenses; Living Expenses/Household Expenses; Medical Expenses National
Local 47 Musicians Relief Fund Provides financial assistance to members of Local 47. Living Expenses/Household Expenses; Medical Expenses National
Music Maker Relief Foundation Provides financial assistance to professional musicians. General; Living Expenses/Household Expenses; Medical Expenses National
Opry Trust Fund Provides financial assistance to country musicians. General; Living Expenses/Household Expenses; Medical Expenses National
Sweet Relief Musicians Fund Provides financials assistance to professional musicians. General; Living Expenses/Household Expenses; Medical Expenses National
California Department of Health Care Services - Genetically Handicapped Persons Program (GHPP) Provides financial and other types of assistance to individuals who have genetic conditions. Durable Medical Equipment; General; Home Care/Companionship/Housekeeping; Medical Expenses; Medical Foods and Nutritional Supplements; Medical Services California
California Jazz Foundation Provides financial assistance to Californian jazz artists. Living Expenses/Household Expenses; Medical Services California
Kansas Children & Youth with Special Health Care Needs (CYSHCN) Provides financial assistance with medical care and medications for children with a medical condition covered by the program. Durable Medical Equipment; Medical Services; Medications/Medication Expenses; Treatments and Procedures Kansas
Mississippi State Department of Health’s - Children and Youth with Special Health Care Needs Services Provides medical and surgical care to children with chronic or disabling conditions. Information & Referral/Counseling Services; Application Assistance/Service Coordination Mississippi
Montana Genetic Testing Financial Assistance Program provides financial assistance for genetic testing to individuals living in Montana that may be at risk of a genetic condition. Testing/Screening; Financial Assistance Montana
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