Last Updated: July 13, 2022

National MPS Society - Extraordinary Experiences Program

PO Box 14686
Durham, NC 27709

TEL: 919-806-0101
Alternate Phone:877-677-1001
FAX: None

Languages Spoken:
Program Website

Services Provided

Eligibility Guidelines

  • Financial Assistance
  • Educational/Recreational/Exercise/Therapeutic Programs
  • Live in service area
  • Meet program's eligibility criteria
  • Meet program's medical criteria
  • Meet program's age criteria


Mucolipidosis, Mucopolysaccharidosis

Program Details

Program provides grants of up to $1000 to individuals diagnosed with MPS and ML who are 13 years of age and older, and their families.

Application Process

Links to Applications/Forms

  • Apply online.
  • Contact the program.
  • See website for other details