Hunter Syndrome Resource Page
The Hunter Syndrome Resource page is intended to provide information on hunter syndrome and to streamline and simplify the way those with hunter syndrome may find assistance paying for their medications.
According to the NIH, hunter syndrome is an inherited disease in which long chains of sugar molecules are not broken down correctly and build up in the body.
Patient Assistance Programs (PAPs) are programs offered by pharmaceutical companies to help those most in need gain access to their medications at no or low cost. Each program has varying financial and insurance guidelines - when in doubt, call the program. To find the specific PAP information for a specific drug click on the list below. You will then be taken to a listing of all the programs available for that medication.|
NeedyMeds neither promotes nor endorses the therapies listed below nor the supporters of this page. This page is for educational purposes only.
|Click HERE to learn more about NeedyMeds and how to use the information on the website and click HERE for more details on pharmaceutical patient assistance programs.|
Medications used in the treatment of Hunter Syndrome.
Blue names means the drug is available through a Patient Assistance Program; an asterisk indicates the drug is not currently available through a patient assistance program:
|Elaprase (idursulface) |
Other Sources of Assistance:
- National Organization for Rare Disorders (NORD) National Organization for Rare Disorders (NORD) Hunter Syndrome (MPS II) Premium Co-Payment Assistance Program
- Chai Lifeline - Hospital and Home-Based Services
- Genetically Handicapped Persons Program (GHPP)
- Chai Lifeline - The Joseph & Elsie Listhaus ChaiLink Program
For those without insurance or unable to pay for a visit with a physician, NeedyMeds has compiled a nationwide list of free, low cost, and sliding scale clinics. Click HERE to find the clinic nearest you.